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29 Patient Organizations Urge Lawmakers to Take Bold, Immediate Action to Protect Those Most Vulnerable to COVID-19

WASHINGTON, D.C, – Twenty-nine organizations representing millions of patients diagnosed with serious health conditions urge the U.S. Senate to immediately pass the U.S. House-approved coronavirus bill and take additional critical steps.    In a ... Chuck Schumer, the organizations emphasize the importance of enacting the Families First Coronavirus Response Act (H.R. 6201).    Public health experts warn that patients with serious, chronic conditions face heightened risk of sickness and death if infected with the novel ... the pandemic.  • Promote health coverage through expedited Medicaid enrollment and initiate a special open enrollment period for Affordable Care Act exchange coverage.  • Expand the availability of telemedicine services for those without COVID-19 symptoms to facilitate social ...

Patient Groups Praise National Paid Family and Medical Leave Program in Reconciliation Bill

... economic hardship for all workers who need to take leave. “Paid family and medical leave is critical for people with serious illnesses and health conditions and their caregivers,” said Lisa Lacasse, president of the American Cancer Society Cancer Action Network (ACS CAN). “Cancer treatment and recovery—like many illnesses—is often difficult and drawn out. We need to do everything we can to ensure people can care for themselves and their loved ones without facing financial devastation.” The provisions included in the legislation meet many of the standards that more than two dozen patient and health care partners put forth in July detailing what a comprehensive family and medical leave program should include, such as inclusion of medical ...

Over Two Dozen Patient Groups and Partners Call for a National Paid Family and Medical Leave Program

Washington, D.C. —More than two dozen patient groups and health care partners are joining forces to call for a comprehensive paid family and medical leave program, including caregiving leave. The groups, which ... regardless of employer size, including part-time, contingent, and self-employed workers. “If you or a loved one is dealing with a serious health condition, like cancer, epilepsy, Alzheimer’s, or mental health issues, having access to paid time off is absolutely critical,” said ...

FDA Proposed Rule Aims to Improve Mammography Quality and Empower Informed Decision Making ​​​​​​​

... and Drug Administration (FDA) today would modernize mammography quality standards and address breast density reporting to patients and their health care providers. The following is a statement from Lisa Lacasse, president of the American Cancer Society Cancer Action Network (ACS CAN): “We are pleased to see the agency issue a proposal that will empower women to make more informed decisions about their health. The proposal issued today related to breast density, which ACS CAN has continually advocated for, will help ensure women get the most ...

Cancer Advocates Call on CMS for Greater Data Transparency; Urge Pausing of Medicaid Redetermination Process in States of Concern

... state agencies.  The unwinding of these Medicaid provisions is one of the largest coverage-related events since the passage of the Affordable Care Act, with an estimated 18 million people expected to lose coverage nationwide and nearly 4 million who have lost coverage already.   The ... in reaction:  “We’re extremely concerned by today’s preliminary data showing a record number of people unfairly disenrolled from their health care coverage. We know from state data that these issues are not improving and call on CMS to take immediate actions to address the growing issue. ...

ACS CAN Delivers Fight Back Express Signatures and Photos to Capitol Hill

... coverage. The panels on display are filled with signatures of people who cared about the issue of cancer and wanted to see improved access to care. In all, there were a total of 630 panels collected. Also on display are highlighted photos of the ACS CAN Fight Back Express traveling ... volunteers from all 50 states will meet with their legislators to advocate for accessible, affordable, available and administratively simple health care that will guarantee all Americans the treatment they need, at a cost they can afford. Lawmakers and visitors to Capitol Hill will have the ...

Bill to make today better for cancer patients passes important milestone

... members of Congress to support this life-changing legislation. If the bill passes, more cancer patients could receive a better type of cancer care that includes: Less pain during treatment Coordinated care among their doctors and other health professionals Emotional support for themselves and their caregivers. Right now, it isn’t yet clear when the U.S. House will vote on this ...

ACS CAN Volunteers Advocate for Childhood Cancer Research

... The volunteers shared their personal stories and urged lawmakers to fund childhood cancer programs and support legislation to improve access to care. Participants asked lawmakers to: Fully fund the Childhood Cancer Survivorship, Treatment, Access and Research (STAR) Act and fully fund the ... making strong investments in the fight against childhood cancer by providing significant funding increases for the National Institutes of Health (NIH) and a proportional increase for the National Cancer Institute (NCI). Cosponsor the Accelerating Kids’ Access to Care Act, to reduce ... life-extending childhood cancer drugs, cosponsor the Pediatric Cancer Drug Supply Act to create a pilot program that directs the Department of Health and Human Services (HHS) to establish and maintain a 6-month reserve of essential childhood cancer chemotherapy drugs. ACS CAN volunteers ...

25 Patient and Provider Groups Urge Supreme Court to Preserve FDA Authority

WASHINGTON, D.C.— January 31, 2023 — Our 25 organizations, representing patients with serious health conditions and providers who care for them, urge the Supreme Court to reverse the Fifth Circuit’s decision in Alliance for Hippocratic Medicine et al. v FDA et al. because it ... to reverse that decision. Generations of Americans have trusted the FDA’s expertise to proceed with lifesaving care and treatment. For the health and safety of patients, we urge the Supreme Court to act in their interest and preserve the authority of the Food and Drug Administration. ...

President’s FY25 Budget Prioritizes Funding for Cancer Research and Prevention

... reducing the cancer burden nationwide through sustained investment in accelerated research at the Advanced Research Projects Agency on Health (ARPA-H) and increased investment in cancer prevention at the Centers for Disease Control and Prevention (CDC).   The budget also included ... Moonshot Program through FY26 by providing $2.9 billion in mandatory funding for over two years and increases for the National Institutes of Health (NIH) and National Cancer Institute (NCI). The proposal would increase the CDC Cancer Programs by $90 million over FY23, including a $45 ... by the federal government must be prioritized to ensure progress to achieve the Moonshot goals continues.  On access to affordable, quality care...  “Equitable access to affordable, comprehensive care is imperative to truly realize the potential of the advances we have made and will ...

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