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Palliative Care Stories
Palliative care is specialized medical care for people with serious illness. This type of care is focused on providing patients with relief from the symptoms, ... patients to palliative care, including the Palliative Care and Hospice Education and Training Act, which would direct the National Institutes of Health (NIH) to expand federal funding for palliative care research; educate the public and providers about palliative care; and support training programs to educate doctors, nurses, social workers and other health care providers to effectively practice palliative care. Each of the following stories increases awareness of the bene ts of palliative care, ...
The Journey of Palliative Care
This video from the Center to Advance Palliative Care explores palliative care, and follows the experience of Joyce Jann and her family, as they work with a palliative care team at Lee Memorial Health System in Fort Myers, Florida. The Journey of Palliative Care ...
Survivor Views: Preventive Care Coverage, Medical Debt, & Food Insecurity
... who have been diagnosed with or treated for cancer in the last seven years. Key Findings Ensuring that cancer screenings and preventive care are free for patients (52%) and reducing the burden of medical debt (51%) are the top two priorities for cancer patients and survivors. While ... felt across income levels. 41% have worried they would run out of food and 47% have worried the food they could afford wasn’t good for their health. 40% have accumulated debt in order to purchase food while paying for cancer care. Nearly one-third have felt they had to choose between ... for their cancer care; in an effort to cut costs to afford their care, 47% have worried that the food they had to eat was not good for their health or well-being. The costs of cancer care have caused 40% to accumulate debt in order to afford food, such as buying groceries on credit cards ...
Cancer Survivor Views: The Importance of Appropriate Palliative Care
Palliative care is specialized medical care for patients with serious illness – including cancer – that focuses on preventing, relieving and addressing symptoms and side effects; and ... day , raising 2 kids with no energy but trying to give them a childhood of fun memories instead of memories of a “sick” mom. Not only was my health taken from me but so was a career in the army and the psychological and emotional effects of having no family around, or anyone my age ...
Survivor Views: Patient Satisfaction by Gender
... August 27-September 12, 2022, the latest survey explores cancer patients’ and survivors’ experiences with diagnosis and addressing their health concerns. The web-based survey was conducted among 1,236 patients and survivors nationwide diagnosed with or treated for cancer in the last ... at a 95% confidence level. Key Findings Overall, the vast majority of cancer patients and survivors are very confident in the quality of their care and comfortable with their relationship with their provider, however women are about twice as likely as men to report feeling only ... are positive, more than a quarter of those who were diagnosed after experiencing symptoms related to their cancer felt that their initial health concerns or symptoms were not taken “very” seriously. Women are more likely than men to report such experiences (31% vs. 21%). One-third ...
Cancer and the SUPPORT for Patients and Communities Act
... to address the opioid epidemic. Overview of the SUPPORT Act [i] Expands opioid treatment and recovery by providing incentives for enhanced care, coordination and innovation; and establishes comprehensive opioid recovery centers. Encourages the use of non-addictive opioid alternatives ... (FDA) to address the challenges and barriers of developing non-addictive medical products used to treat pain; (3) requiring the Secretary of Health and Human Services (HHS) to submit a report to Congress on access and effectiveness of abuse-deterrent opioid formulations; and (4) ... Agency (DEA) to consider when setting annual opioid quotas (i.e. limits on supply), including diversion, abuse, overdose deaths and public health impacts; and requires DEA to explain the public health benefits if the agency approves an increase in any annual opioid quota. ACS CAN ...
Maintaining Access to Pain Management for Cancer Patients & Survivors
... chronic pain, it remains a highly stigmatized issue. But given proper attention most pain can be treated and relieved. Integrative pain care that includes non-drug therapies along with medications is effective in keeping patient pain under control. While not the only tool, opioid ... of cancer patients and survivors in such efforts. Balanced Public Policy Response ACS CAN supports balanced policies that address the public health concerns relevant to the opioid epidemic and that do not impede access to pain medications for patients and survivors who need them, such ... new evidence-based pain treatments, pharmacological and non-pharmacological Increasing provider education on pain management and palliative care Ensuring that public and private insurance programs cover the range of evidence-based pain treatments in a way that is accessible and ...
Survivor Views: One in Ten Impacted by Recent Drug Shortages
... drug shortages at 22%. Among those who have been impacted by drug shortages in the past year, 57% say the shortage was related to their cancer care, including medications to treat cancer as well as its side effects and complications. Nearly a third of those experiencing drug shortages ... that they would otherwise have addressed in an office visit. While most of those telehealth visits (78%) took place during the Covid-19 Public Health Emergency (PHE), the number reporting telehealth visits conducted outside of the PHE climbed from 15% prior to the PHE to 40% who have ... to have telehealth visits since the end of the PHE in May 2023. Forty-two percent say they plan to continue using telehealth visits with health care providers about issues related to their cancer. Fifteen percent of those surveyed have seen a provider located in a different ...
Survivor Views on Social Connection & Isolation
... at least some of the time, a number similar to recent national surveys. Numerous studies describe the link between social isolation and negative health outcomes, [1] and a 2023 study by the American Cancer Society identifies an increased mortality risk among cancer survivors with higher ... reporting this impacted their connections a great deal. Other factors impacting social connection include stress, depression, or other mental health concerns (50%), missing or stopping work (45%), and those in their social circles feeling scared to talk to them, not knowing what to say, ... times to tell my loved ones because I didn't want to burden them, but then they would tell me it would not burden them, it would help them take care of me better.” “Teaching caregivers/supporters good questions to ask, things not to say, or how to just hang out in silence.” ...
Survivor Views of Pharmacogenomic Testing
... advocacy affiliate, ACS CAN has successfully advocated for billions of dollars in cancer research funding, expanded access to quality affordable health care, and advanced proven tobacco control measures. We stand with our volunteers, working to make cancer a top priority for policymakers in cities, ...